Methodist in the Media

Caring for Ella: MFH Hospice Workers, Mom Remember Baby

Published: March 14, 2022

Stephanie Baustian remembers when the neurologist cried.

Baustian had taken her 4-month-old daughter, Isabella, to the Omaha specialist after the baby began having seizures.

Isabella — Ella for short — was a tiny infant with big blue eyes and long lashes. She had a cute, little baby nose and dark hair. She was precious to her family.

“She was our little, perfect princess,” Baustian said.

Baustian recalls the day she took her princess to the neurologist.

“I will never forget that day, because I’ve never had a doctor cry in front of me,” the Fremont woman said. “Usually, they’re pretty tough.”

But the neurologist, then pregnant, had tough news for Baustian.

Ella was diagnosed with early infantile epileptic encephalopathy.

“She explained that the diagnosis was terminal,” Baustian said.

Fremont Tribune: Caring for Ella: MFH Hospice Workers, Mom Remember Baby